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darlingdeathbird
darlingdeathbird
29 March 2018 @ 12:51 pm
Oh hi, Mark  
I took my own advice and haven't been trying to get anything done. Well, besides my taxes. I am scanning those documents as we speak to email to the tax lady. But honestly, who cares? I know I won't get a lot of money back.

It's kinda been nice, aside to popping Tylenol and Gas-X to deal with symptoms my meds should be handling? Lol I've been able to calm my brain about the story thoughts. I messaged GiAnna while I was crying about stomach pain and she started sharing songs from Crazy Ex-Girlfriend so I've been watching that at night and heavily enjoying it. I last-minute scheduled a massage, which was excellent. I had a soothing experience coloring this fanart of Kurama and Hiei being adorable.




It's just now that I'm not working on anything my creative urges are sort of jetting around like a pinball? One minute I'll think about how fun it'd be to get back into cosplay work, then the next I remember I was plotting the next chapter of Koenma's Closet... Then I'm wanting to at least work on some paintings for HT to deal with the inspiration that isn't going towards actual writing.

And then ANOTHER part of me thinks it'd be a fine time just to consume instead of produce. Last weekend I was going to go to the library and take home a stack of books that struck my fancy, if I hadn't been incapacitated by random pain and fatigue. Or, you know, maybe whip something out that I've read a long time ago that made me happy. I still wanna do that, and could now that the weekend starts tomorrow.

Ugh, but it's sad that I dread it starting, like my body knows "hey it's Jenny time. Let's ruin it!"

If I could just somehow trick it into thinking I'm still at work, then it'll be fiiiiine.
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lunabee34[personal profile] lunabee34 on March 29th, 2018 10:12 pm (UTC)
*hugs*

Do you have Crohn's or IBS? (If that's too invasive a question, just tell me to buzz off)
darlingdeathbird: Candles & Flower petals[personal profile] darlingdeathbird on March 30th, 2018 08:15 pm (UTC)
I don't mind sharing. :) It's IBS. I've had it a long time but it only became debilitating and miserable in the last two years. I'm thankful it's not Crohn's, though. Very thankful.
lunabee34[personal profile] lunabee34 on March 31st, 2018 03:42 pm (UTC)
I have celiac and am also very grateful it's not Crohn's.

My mom has IBS + celiac, so I know how terrible IBS can be. Do you do a low-FODMAP diet? She has found that to be really helpful.
darlingdeathbird[personal profile] darlingdeathbird on March 31st, 2018 08:04 pm (UTC)
RE: celiac: oy, I'm sorry. At least nowadays it's a lot easier to avoid gluten. What do you think of the gluten-free craze amongst non-Celiac diagnosed people?

My mother, who also has IBS, has been helped by that diet too. Unfortunately, for me, it's so bad that I can avoid anything that seems provocative and still get symptoms. My doctor called it like fibromyalgia in my GI track. There was a time all I was eating was saltines and grapes and still keeling over.
lunabee34[personal profile] lunabee34 on April 2nd, 2018 06:33 pm (UTC)
*hugs*

I'm just grateful that I got diagnosed before I got really sick. I got tested because my mom found out she had it, and mom was so sick she spent about 6 months thinking she had cancer. :(

I am so grateful for the gluten free craze. My mom got diagnosed in 2015 and I was diagnosed in 2016. Just in the time from her diagnosis to mine, the amount of gluten free food in stores and restaurants increased astronomically. I am in favor of anything that makes manufacturers take gluten out of food that shouldn't have any in it in the first place! LOL

Mom also has IBS in addition to the celiac and some other food intolerances. After going gf, she didn't respond as well and heal quickly, and she kept thinking she was somehow getting accidentally glutened, but turns out she needs to be on a low FODMAP diet which is so excruciating on top of no gluten. I did a very strict diet on top of the no gluten for my interstitial cystitis; that lasted about 8 months and was the most difficult thing i"ve ever done.

I'm so sorry you're having such trouble regulating your gut!
darlingdeathbird[personal profile] darlingdeathbird on April 5th, 2018 05:52 pm (UTC)
That is very lucky, because I am a little bit appalled by how clueless doctors are about these issues and the suffering that can be had while they misdiagnose or throw up their hands. For me it all started with going to the ER because of extreme nausea for 24hrs. They thought I had a bacterial infection and sent me home with antinausea meds that didn't even work. Then my primary care doctor AND the gastroenterologist he referred me to were content believing I had gastritis for literally a year and a half before I thought something was up and went to someone else who went "wow no, this is basically the shittiest IBS a person could have. Take this." Now I have a med *sorta* helping.

Anyway, ugh, that's an even scarier story, RE thinking she had cancer. And I can't help but think the leash we have to put ourselves on depletes our quality of life and tends to make us feel way too responsible for our own pain? That's just me.
lunabee34[personal profile] lunabee34 on April 8th, 2018 06:14 pm (UTC)
I'm so sorry you had that experience.

I hate the way patients get misdiagnosed so often (especially women!). I am ready for Star Trek medicine. I want a tricorder, dammit. LOL

I agree that these diseases which are managed primarily by lifestyle changes does make it seem like it's your fault if you aren't getting better fast enough or when you have pain. :(